What's Your Story with Jaime & Stan

What’s Your Story, Justin Brubaker? Parenting with purpose, rare resilience, and a whole lot of love

Episode Summary

In this deeply moving and joy-filled episode, we sit down with Justin Brubaker, a devoted dad, advocate, and business professional who shares the extraordinary journey of raising his two sons, Jackson and Cooper, both of whom live with Saul Wilson Syndrome, a rare form of dwarfism affecting fewer than 25 people in the world. Justin opens up about the challenges and triumphs of parenting children with unique needs, the strength of his family’s bond, and the joy they’ve found in living big, loving hard, and embracing life without limits. From musical gifts to martial arts, advocacy work to spontaneous family adventures, this conversation will inspire anyone who believes in the power of community, love, and resilience.

Episode Notes

In this deeply moving and joy-filled episode, we sit down with Justin Brubaker, a devoted dad, advocate, and business professional who shares the extraordinary journey of raising his two sons, Jackson and Cooper, both of whom live with Saul Wilson Syndrome, a rare form of dwarfism affecting fewer than 25 people in the world.

Justin opens up about the challenges and triumphs of parenting children with unique needs, the strength of his family’s bond, and the joy they’ve found in living big, loving hard, and embracing life without limits. From musical gifts to martial arts, advocacy work to spontaneous family adventures, this conversation will inspire anyone who believes in the power of community, love, and resilience.

Key topics discussed

A rare diagnosis

• Justin shares the emotional journey of discovering both of his sons had Saul Wilson Syndrome, and what it meant to navigate a diagnosis so rare that fewer than 25 people globally are affected.
• How their family learned to advocate, educate, and support one another through an often-unpredictable medical journey.

Talents that shine bright

• Jackson’s musical genius including perfect pitch and teaching himself piano during the pandemic.
• Cooper’s fearless spirit excelling in martial arts and taking on leadership roles on his sports teams despite physical limitations.

The power of community

• How neighbors, schools, and friends rallied around the Brubakers, supporting Jackson’s role as football team manager and helping the boys thrive.
• Why finding allies, both near and far, has made all the difference in their family’s journey.

Parenting through challenges

• How Justin and his wife empower their kids by blending advocacy with independence, teaching their sons to adapt and thrive in any environment.
• The delicate balance of protecting their children while preparing them to speak up for themselves.

Lessons in acceptance and advocacy

• How the Brubakers face societal ignorance and gently push for more understanding, inclusion, and acceptance.
• Justin’s belief that everyone’s uniqueness deserves celebration, not pity.

Cherishing life’s moments

• Whether it’s a Disney trip or a day at home, the Brubaker family is committed to finding joy in the little things.
• Justin reflects on gratitude, perspective, and intentionally making every moment count.

Justin asks if you would like to make a donation please do so to Manheim Central Football booster club. This will benefit the kids who have really adopted his boys as big brothers and peers.  

Memorable quotes

“Why us? Changed to, I’m glad it’s us. We’re meant for this.” – Justin Brubaker
“We don’t focus on what they can’t do; we adapt to help them do anything they dream of.” – Justin Brubaker
“It’s not about the size of the dog in the fight—it’s about the size of the fight in the dog.” – Justin Brubaker

Where to listen & watch:
YouTube: https://youtu.be/HOaxG4DQ8Ps
Apple Podcasts: https://tinyurl.com/mtkxjcez
Spotify: https://tinyurl.com/yhkw24v7
Amazon Music: https://tinyurl.com/2hnfynpm

Connect with Justin:
LinkedIn: https://www.linkedin.com/in/justinbrubaker/
Learn about Saul Wilson Syndrome: https://tinyurl.com/t3nb2y38
Other articles to read: 
https://tinyurl.com/9d3hpu2w
https://tinyurl.com/3amfvku8
https://tinyurl.com/4xrs8spd

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